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Anna Marie Jaworski is the mother of a son with a severe congenital heart defect. She started a publishing company,www.babyheartspress.com, for the congenital heart defect community. Erin Engwall is the mother of a son, age 4, with Hypoplastic Left Heart Syndrome,www.mynameisjonas09.blogspot.ca. She’s a South Florida radio personality and a freelance writer. They tell us about themselves, their lives and their careers, and their sons and their heart defects. Drawing on their own experience and that of other family caregivers they discuss the challenges created by severe congenital heart defect
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