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Heart to Heart with Anna

Heart to Heart with Anna

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March 11th 2014: Special Encore Presentation: You are Not Alone

How do you feel when you are given the worst news of your life? What if that news is that your unborn child’s heart isn’t growing correctly and your child will probably need life-saving open-heart surgery in the first days or weeks of life? What if you are an adult who was born with a congenital heart defect and you’re always waiting for the other shoe to drop? What if you are the grandparents awaiting that phone call drawing you to the hospital to see your grandchild’s birth only to be replaced with a phone call full of tears because your grandchild’s heart isn’t perfect? At times like these

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Nancy and Jess McCain

Nancy and Jess McCain: We are the grandparents of Samantha McCain. She was born on March 1, 1997. We found out when she was two days old that she was born with hypoplastic left heart syndrome. She had her first open-heart surgery when she was four days old, the second when she was nine months old and her third surgery when she was five years old. All of this was a very emotional time for all of us. We as grandparents had to stand back and let her parents Steve and Pam McCain make all the decisions about her care. Quilting was a way for me to cope. When we were asked to help with the Congenital Heart Defect Awareness Quilts we accepted and help make the first quilt and have gone on to make s
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Callie Rickard

Callie Rickard: I am a wife and stay-at-home mom to Diana, Alex, and DJ. After a normal pregnancy, we welcomed DJ into the world on June 23, 2003. DJ was diagnosed with hypoplastic left heart syndrome at two days old, and then later Shone's Complex with severe pulmonary hypertension. DJ has had seven open-heart surgeries, (five before his first birthday), one at age two and his last one at age seven. He’s had four aortic and mitral valves replaced. He received the smallest mechanical mitral valve ever placed in a baby. In 2010 a heart and double lung transplant was recommended but DJ was considered too high risk. After his last open-heart surgery, he suffered a massive brain hemorrhage requi
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Carl Wolford

Carl Wolford: I was born in 1957, the fourth of five children. At four months old I was only the second baby to survive a surgical procedure by Dr. Denton Cooley to correct the heart defect called Total Anomalous Pulmonary Venous Return, or TAPVR. After being near death prior to surgery, the total correction has led to a very active life full of sports (some still continue today), a long-time career as a financial advisor, three children of my own, none of which have any heart defects whatsoever, and a passion for encouraging and helping others affected by congenital heart defects. From that day in the recovery room at Texas Children’s Hospital in Houston, until a pacemaker was installed 1
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