A Family Caregiver's Story of Caring for FASD

October 13, 2014
Hosted by Dr. Gordon Atherley

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Guest Information

 

Episode Description

Linda Rosenbaum’s new book, ‘Not Exactly as Planned’, is a memoir about her family and the unexpected challenges of raising their son Michael, adopted at birth, diagnosed with fetal alcohol syndrome at age six. She blogs at linda-rosenbaum.blogspot.com. She talks about her experience with family caregiving and her book. From her experience she identifies the most challenging of the challenges created for children, young people and family caregivers, and describes the happiness that is possible for them. She describes the support she advocates for children, young people and family caregivers confronting the challenges she highlights. She explains the role she sees for spirituality. She says what more she would like to do to and see done to improve support for children, young people and family caregivers confronting the challenges. She shares her message for family caregivers who have recently learned that a child they are caring for may have to live with fetal alcohol syndrome.

Family Caregivers Unite!

Family Caregivers Unite!

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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.

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Dr. Gordon Atherley

Dr. Gordon Atherley

Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.

Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.

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