Jeni Busta

Jeni Busta

Jeni Busta is a 28-year-old survivor. She was diagnosed before birth with hypoplastic left heart syndrome or HLHS. In 1985 Jeni’s medical professionals knew no other older survivors. It was a miracle that Jeni survived. She was the first HLHS baby from UCLA Medical Center to make it. Jeni underwent her first open-heart surgery her first day of life and her second surgery, the Fontan, at 17 months of age. When she was 3 years old, she received a pacemaker. Since then she has had several procedures including pacemaker battery replacements and catheterizations. Growing up with a CHD was difficult since many of Jeni’s peers didn’t understand what made her heart different. She appeared healthy but she was functioning with only half a heart – something nobody could see. She is currently happily married and living in California. She reaches out to CHD families all over the world to give them hope. She tells HLHS families that her faith and dependence on Christ is what keeps her going everyday.