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Family Caregivers Unite!

Family Caregivers Unite!

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January 12th 2010:Family caregivers speak: Family caregiving for children with serious medical conditions for which there is no cure

Two mothers of children with severely disabling, incurable medical conditions share with us their experiences as family caregivers. One of them recalls her memories of her child, who died three years ago. The other describes the changes in her child’s condition, and how these affect her family caregiving. The host, a doctor, describes the medical impact of the conditions. The mothers show us what it really means to be a family caregiver, the person who provides care when everyone else has gone home. They tell us about the things that sustain them in their family caregiving. They talk abo

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Featured Guests

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Ruth D¡¦Silva

Ruth D¡¦Silva graduated from the University of Waterloo with a degree in Mathematics. In her professional career, she has been a Systems Analyst, Software Programmer, Systems Programmer and served as Liaison with clients. She currently holds the position of Director of Software Sciences and manages a group of programmers and engineers as well as liaising with clients. She specializes in User Interfaces and is involved in the development of Mon Ami„§ƒz a caregiver's support tool. A dedicated mother, she was also family caregiver to both parents. She continues as family caregiver to her youngest son, who was born with Down Syndrome and has Methotrexate-Induced Leukoencephalopathy. As a r
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Lori Di Ilio

Lori Di Ilio I’m happily married to Rob, my husband of 22 years. I’m the mother of Kaitlyn, who’s 16. Our first child Matthew would have been 19 but sadly passed away 3 years ago. Our unexpected journey began when, at age 4, Matthew was diagnosed with a rare progressive degenerative disease, Sanfilippo Syndrome. We suspected there was a problem but we never dreamt that it would have such a devastating outcome. Then everything changed. Our hopes and dreams were dashed. We went through stages of grief over the years. We became his caregivers, advocates, nurses, therapists and more. We learned to navigate the system to best serve our family and him. Though we endured many ups an
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