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After the loss of two infants and the premature birth of her son Jeremy, Deborah became involved in programs enhancing family participation in health care. She is co-investigator for The Initiative for Pediatric Palliative Care, a national education and quality improvement project. She currently serves on the FDA’s Pediatric Advisory Committee, and is a longtime member of the Ethics Forum at Children’s National Medical Center. She is the recipient Pediatric Nursing’s 2003 Humanitarian and 1998 Excellence in Writing Awards.
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