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Marcy Darnovsky, PhD, is Executive Director of the Center for Genetics and Society, http://www.geneticsandsociety.org/index.php. Jeff Nisker, MD PhD FRCSC FCAHS, is a Professor of Obstetrics-Gynaecology at the Schulich School Medicine & Dentistry, Western University, and Scientist, Children’s Health Research Institute, http://publish.uwo.ca/~jnisker/. They highlight their lives, careers and experience with family caregiving. They describe their work with their organizations. They discuss the benefits and risks associated with the use of families’ genetic inheritance data for research and for m
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