Micheal Vonn is a lawyer and the Policy Director of the British Columbia Civil Liberties Association, https://bccla.org/. She explains how civil liberties relate to ethical principles, governance, and harms in medical research. She references the UK’s Nuffield Council on Bioethics’ Report, bioethics@nuffieldbioethics.org, published February 2015, which recognizes how developments in data science and computing challenge conventional approaches to governance of data used in medical research. She discusses the challenges to civil liberties created for individuals who are the subject of medical re
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