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November 30th 2006:From Parent to Advocate: Long Days' Journey

After the loss of two infants and the premature birth of her son Jeremy, Deborah became involved in programs enhancing family participation in health care. She is co-investigator for The Initiative for Pediatric Palliative Care, a national education and quality improvement project. She currently serves on the FDA’s Pediatric Advisory Committee, and is a longtime member of the Ethics Forum at Children’s National Medical Center. She is the recipient Pediatric Nursing’s 2003 Humanitarian and 1998 Excellence in Writing Awards.

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