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Heart to Heart with Anna

Heart to Heart with Anna

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January 14th 2014:Sports and ExtraCurricular Activities for Congenital Heart Defects Survivors

What kind of quality of life can survivors of critical congenital heart defects or CCHDs have regarding sports and hobbies? About 25% of CHDs are considered CCHDs. Children with CCHDs need surgery or other procedures within the first year of life. They are at risk for death or disability if their heart defect is not detected soon after birth. Some people with treated CCHDs have few related health problems later in life. However, long-term effects of CCHDs can include delayed development and reduced stamina during exercise. Could it be that some CHD Survivors can beat the odds? Meet three ad

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Mark Cummings

At only 2 months of age it was discovered that I had been born with dextrocardia situs inversus with a single ventricular bilateral cavus L-loop malposition of the great arteries and an atrioventricular septal defect. To put it simply, my heart only has two chambers and it's on the opposite side of my body facing my shoulder blade. When I was 15 I was diagnosed with kyphosis, a severe curvature of the spine that causes one to have a humpback. The condition threatened to crush my internal organs. I had two 18 inch steel rods bolted to my spine to correct the problem. As a young child I was also diagnosed with attention deficit hyperactivity disorder. I was prone to lashing out, never knowin
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Victoria Scoggins

I was born on March 31, 1983. I was 1 month old before my parents knew I had a heart defect. After confirming I had lost weight, the doctor took a chest x-ray. The next morning, we saw a pediatric cardiologist where I was diagnosed with tricuspid atresia, hypoplastic right ventricle, coarctation of the aorta and ventricular and atrial septal defects. I was also in heart failure. We flew to Houston that night and I had a subclavian repair for my coarctation and my pulmonary artery was banded. The next several years we put off the Fontan Procedure until it was no longer considered experimental and I was older and bigger. Before, having the Fontan I was in ballet, tap and musical performance
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Alex Jaworski

I was born on August 11th, 1994. I was diagnosed with hypoplastic left heart syndrome when I was two months old, and the doctors told my parents that the odds of me surviving surgery were extremely small. Despite that, I had my 1st surgery within days, and my 2nd surgery when I was nine months old. I didn’t need surgery again until I was 17 years old, when my Fontan was converted to an extra-cardiac Fontan. My father and older brother both did karate since I was little, so I started doing it when I was six. I continued until I was ten, after earning my Black Belt. At that time, I was getting into robotics, and participated with teams in annual FIRST LEGO League and Robofest competitions. F
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