A Father and his Accidental Education in Autism
February 12, 2013
Hosted by Dr. Gordon Atherley
Joel Yanofsky, http://Joelyanofsky.com, is the author of ‘Bad Animals: A Father’s Accidental Education in Autism’. He talks about his experience of family caregiving, his book, ‘Bad Animals’, and why he wrote it. He describes his struggle as a father to enter his son's world of autism. He discusses the challenges for family caregivers caring for children with autism, including the daily frustrations, and the ways he responded. He says what he learned from other parents. He describes the role of family caregivers, and the ways in which the healthcare and social systems see the role of family caregivers. He discusses the help family caregivers need in fulfilling their role, and where they find that help. He says what more he wants to do and see done to help family caregivers. He explains what more he would like to see done by the healthcare professions to help the family caregivers. He shares his message for family caregivers caring for children with autism spectrum disorders.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.