Parenting Children with Special Needs

June 18, 2013
Hosted by Dr. Gordon Atherley

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Guest Information

 

Episode Description

Louise Kinross is special projects manager at www.hollandbloorview.ca, Holland Bloorview Kids Rehabilitation Hospital and editor of BLOOM, a magazine on parenting children with disabilities. She shares her personal story, explains her work, and talks about her life as Ben’s Mom. She discusses the challenges to parents in parenting children with special needs, in caring for their entire families, in working when they have jobs perhaps even as the family breadwinner, and in maintaining the quality of the lives of their families, of their family members, and of themselves. She explains ways in which the challenges are successfully confronted through the work of Holland Bloorview and recorded in the stories on her BlOOM blog. She says what more she wants to do and see done by healthcare systems to help parents parenting children with special needs, and she shares her message to parents parenting children with special needs.

Family Caregivers Unite!

Family Caregivers Unite!

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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.

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Dr. Gordon Atherley

Dr. Gordon Atherley

Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.

Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.

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