Informing Family Caregivers about Vector-Borne Illnesses such as Lyme disease
June 23, 2014
Hosted by Dr. Gordon Atherley
Jim Wilson, President and founder of the Canadian Lyme Disease Foundation, http://canlyme.com/, is himself a victim of Lyme disease and the father of victims of Lyme disease. Rossana Magnotta established ‘The G. Magnotta Foundation for Vector-Borne Diseases’, http://www.gmagnottafoundation.com/, with the primary mission of helping to establish Canada’s first research facility for Lyme disease. They talk about the consequences of Lyme disease for them and their families, and their work with Lyme disease. They discuss the challenges they experienced in getting the information they needed when Lyme disease first entered their lives, and whether other people still experience the same challenges as they did. They explain the ways in which, through their work and that of their organizations, information challenges are being addressed. They say what more they would like to do and see done to address the information needs of individuals and families affected by vector-borne illnesses.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.