Anna Marie Jaworski
Anna Marie Jaworski is the mother of a son with a severe congenital heart defect (CHD). He endured two open-heart surgeries in his first year of life. His surgeon told her and husband Frank that he was born with hypoplastic left heart syndrome. He underwent a revision of his last surgery at age 17 and had a Maze Procedure to stave off future arrhythmias. With a lack of information for parents, she wrote a book about the syndrome and started a publishing company for the CHD community, http://www.babyheartspress.com/. She started a support group for CHD parents in Central Texas and became a public speaker. Joey, her heart-healthy son, inspired her to write a second book, ‘My Brother Needs an Operation’. Later, she started sharing stories with other CHD parents to educate and inspire them. Encouraged by these parents, she became the editor of two books, ‘The Heart of a Mother and The Heart of a Father’. The books provide hope, encouragement, support and education to the CHD community.