Amy  Basken

Amy Basken

Amy Basken was thrust into the world of congenital heart disease, or CHD, 9 years ago with the birth of her son, Nicholas. The first 3 days of his life included 3 hospitals, a helicopter ride and heart surgery to repair a severe coarctation of the aorta. While Nicholas was an infant, Amy told her story to lawmakers in Washington DC. She then realized the power of the individual story, and the positive impact it can have on others. Amy has led congenital heart disease advocacy efforts for many of the largest national CHD organizations and coalitions. Her accomplishments include the introduction, passage and funding of the Congenital Heart Futures Act, the development and growth of the Congressional Congenital Heart Caucus, as well as coordinating national messaging for the Critical CHD Screening movement. Amy recently became President/CEO of the Pediatric Congenital Heart Association, which will unite and amplify the voices of those in the Heart World. Please visit