Melanie York, who has Lou Gehrig’s disease, and Colleen Smailes, whose husband Clayton died from it in 2009, share their experience with and insights into family caregiving for this devastating, incurable disease.
Also called ALS and motor neurone disease, Lou Gehrig’s disease attacks the brain and nervous system. It affects around 33,000 people in North America.
Progressing in phases, it destroys the brain’s ability to start and control movements. It causes loss of strength and the ability to move the arms, legs, and body. It brings failure of the muscles in the diaphragm and chest and