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Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America, http://www.hdsa.org . Bev Heim-Myers is Chief Executive Officer and Executive Director of the Huntington Society of Canada, http://www.huntingtonsociety.ca . They talk about their lives, experience with family caregiving, and their work with their organizations. They explain the challenges that arise in the American and Canadian healthcare, social and justice systems for protection of the genetic heritage of families with a history of Huntington’s disease. They discuss responses to the challenges in th
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