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Family Caregivers Unite!

Family Caregivers Unite!

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February 03rd 2014:Protecting the Genetic Data of Families with Histories of Serious illnesses

Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America, Bev Heim-Myers is Chief Executive Officer and Executive Director of the Huntington Society of Canada, They explain their Societies’ work generally and in protecting the genetic data of families with histories of Huntington’s disease. They discuss genome projects and the benefits and challenges that these create, especially in protecting the privacy of the genetic heritage of families with histories of serious illnesses. They examine ways of overcoming the

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Louise Vetter

Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America,, the largest public not-for-profit organization devoted to fighting Huntington’s disease. Since joining the Society in 2009, she has led the expansion of the its reach with new programs to strengthen support for the Huntington’s disease community, to advocate for better access to care for those affected by the disease, to improve physician understanding of HD, and to support research to bring new treatments to Huntington’s disease families. She serves as Secretary of the International Huntington’s Association and is a member of the Board of Direc
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Bev Heim-Myers

Bev Heim-Myers joined the Huntington Society of Canada,, in 2010 as CEO & Executive Director. She is the Chair of the Canadian Coalition for Genetic Fairness, sits on the Governing Council of the Health Charities Coalition Canada and is an active member of the Neurological Health Charities of Canada and the National Population Health Study of Neurological Conditions. She is also on the Board of the International Huntington Association. Previously she was at the Heart and Stroke Foundation of Ontario as the Senior Manager Research and then the Regional Manager of Ontario Central West. She developed the regional strategic vision,
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