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May 06th 2014:Questions of Ethics in Collecting Family Genetic Data

Dr. Alice Virani specializes in the social, ethical and cultural implications of new genomic technologies. She holds a Masters in Public Health, a Masters in Human Sciences, and a PhD in medical genetics and applied ethics. She describes her work as a clinical ethicist. She explains family genetic data and why it raises questions of ethics. She says what she sees as the most important ethical questions that arise when family genetic data could be misused or abused, when it is widely distributed electronically and stored indefinitely in computers, and when people are asked to give consent to di

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Dr. Alice Virani

Dr. Alice Virani specializes in the social, ethical and cultural implications of new genomic technologies. A genetic counselor by training, she also holds a Masters in Public Health from Columbia University, a Masters in Human Sciences from Oxford University and a PhD research from the University of British Columbia in medical genetics and applied ethics. She currently serves as a clinical ethicist for the Provincial Health Service Authority of BC. She also has considerable experience in research ethics and procedures, and has served as the ethicist on various Research Ethics Boards since 2008. She provides education and training in ethics, and teaches a graduate seminar in ethics and geneti
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