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Jeremy Gruber, JD, is President and Executive Director of the Council for Responsible Genetics, http://www.councilforresponsiblegenetics.org/. He explains the Council’s work, genetic information, and why it warrants special protection. He highlights the greatest risks when protection is insufficient of genetic information linked to identifiable individuals and their genetic relatives and descendants. He says how genetic information in big databases could be linked to identifiable individuals even when their names are excluded from the databases. He explains de-identification of records kept in
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