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August 25th 2014:Feasibility of De Identification of Genetic Data

Jeremy Gruber, JD, is President and Executive Director of the Council for Responsible Genetics, http://www.councilforresponsiblegenetics.org/. He explains the Council’s work, genetic information, and why it warrants special protection. He highlights the greatest risks when protection is insufficient of genetic information linked to identifiable individuals and their genetic relatives and descendants. He says how genetic information in big databases could be linked to identifiable individuals even when their names are excluded from the databases. He explains de-identification of records kept in

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Jeremy Gruber

Jeremy Gruber, lawyer, writer, and public policy advocate, is President and Executive Director of the Council for Responsible Genetics, http://www.councilforresponsiblegenetics.org/. He’s worked for over twenty years on genetic privacy and non-discrimination legislation at the state and Federal level. He helped author and pass numerous state laws on genetic non-discrimination. He’s a founder and executive committee member of the Coalition for Genetic Fairness, a group of 500 organizations, which advocated for genetic non-discrimination legislation on Capitol Hill and played a major role in the passage of the Genetic Information Non-Discrimination Act by Congress. He worked closely with membe
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