Powerhouse Project--Young Carers Initiative
April 3, 2012
Hosted by Dr. Gordon Atherley
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Guest Information
Episode Description
Angela Arsenio is the Manager of the Powerhouse Project. Brianna Kane is 18 years old and Big Sister to a 12 year old girl with floating harbor syndrome, a rare genetic disease. They each talk about their experience as young caregivers in their own families and how they became involved in caregiving outside their families. Angela describes the Powerhouse Project and Brianna says how she became involved. They discuss the things that young caregivers do, the challenges they face, and the health challenges of the persons they are caring for. The describe how the Powerhouse project and the young caregivers work with the families of the persons they are caring for. They talk about the successes and the satisfactions experienced by young caregivers, and the way their school work can benefit from their caregiving work. They each say what more they would like to see done to promote the work of young caregivers and to get them more recognition. They each have messages for young caregivers.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.
