How and where family caregivers find the information they need
July 24, 2012
Hosted by Dr. Gordon Atherley
Wendy Newman is currently Senior Fellow, Faculty of Information, University of Toronto, following a career in librarianship and public policy advocacy. Carolyn Murray is a musician, composer, artist, community volunteer and family caregiver for her 95-year-old parents and her husband following a serious accident. They explain the information needs of family caregivers and the types of information available to them. They discuss the sources of information needed by family caregivers and describe experience in looking for the information. Using family caregiving guidelines as an example, they examine ways in which the information needs of family caregivers can be met. They describe the standards and precautions that should be applied to information that family caregivers rely on. They say how the information resources should be built to meet the needs of family caregivers. They share their messages for family caregivers in light of their growing importance and their diverse needs.
Family Caregivers Unite!
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Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.