Helping Family Caregivers Advocate with Qualitative Research
October 27, 2014
Hosted by Dr. Gordon Atherley
Dr. Gordon Atherley founded Family Caregivers Unite on VoiceAmerica to empower family caregivers by amplifying their voice, spreading their vision, and publicizing their value. He founded EQualitative Research based on his experience of hearing family caregivers’ stories on Family Caregivers Unite. He explains advocacy and how it differs from activism. He talks about advocacy for meeting family caregivers’ needs for information and support, and their family members’ needs for protection and care. He explains qualitative research, how it compiles stories of first-hand experiences of family caregivers and family members, and what makes the stories so helpful for advocacy. He describes getting started and what more needs doing and by whom to bring qualitative research to advocacy for family caregivers. He shares his message for family caregivers whose lives are crowded with family caregiving responsibilities or who are taking a well-earned rest from family caregiving.
Family Caregivers Unite!
Archives Available on VoiceAmerica Variety Channel
Family caregivers are the people who provide care to partners, parents, children, brothers, sisters, cousins, friends, neighbors and even co-workers. They are the people who provide care when everyone else has gone home. They are the people who organize the functioning of the home for the person with special needs, and for the family as a whole. They are the coordinators of care, the managers of appointments, the preventers of loneliness, and the makers of decisions even to the point of Power of Attorney. And they are so often people who themselves are burdened with their own health challenges and who may be in only marginally better health than the persons to whom they are providing family caregiving.
Dr. Gordon Atherley
Dr Gordon Atherley holds the British equivalent of the Canadian PhD and MD degrees, and LLD, Honoris Causa, from Canada’s Simon Fraser University. His awards include Fellow of the Royal Society of Arts, UK. His medical specialties are occupational medicine and public health.
As first President and Chief Executive Officer of the Canadian Centre for Occupational Health and Safety, the Canadian equivalent of the US National Institute of Occupational Safety and Health, he led the creation of Canada’s electronic information service in occupational health and safety, now used in more than 40 countries.
In academia, he held senior, tenured, full-time positions, including departmental chair, in university faculties of physics, engineering, and medicine. He is the author of a textbook and numerous articles and publications.
Since retiring from medical practice, he’s built up Greyhead Associates, which critically researches the safety, effectiveness and fairness of health services for persons with special needs.
Through Virtual Care International, a company of which he’s President, he’s involved in providing sensible technology to family caregivers to help them with their responsibilities, workloads, and concerns.
Now an activist, he urges family caregivers to unite because, more and more, it’s not just their families who depend on them, it’s also the healthcare system as a whole, as it struggles to meet more and more needs of more and more people.