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Family Caregivers Unite!

Family Caregivers Unite!

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May 06th 2013:Family Caregiving and Cystic Fibrosis

Leona Pinsky trained and worked as a lawyer. She and her husband of 25 years have four children the youngest of whom has cystic fibrosis. She’s a passionate supporter of www.cysticfibrosis.ca, for which John Bennett is the Newfoundland & Labrador Regional Director and Provincial Advocate. He’s been a tireless volunteer since his son John was diagnosed with cystic fibrosis in July 2010 at just 2 ½ months old. They describe their lives as parents of children with cystic fibrosis. They explain Cystic Fibrosis Canada’s support for family caregivers and its work generally. They discuss the role of

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John Bennett

John Bennett is the Newfoundland & Labrador Regional Director and Provincial Advocate for Cystic Fibrosis Canada, www.cysticfibrosis.ca. He has been a tireless volunteer and advocate since his son John was diagnosed with cystic fibrosis in July 2010 at just 2 ½ months old. As Regional Director, his role is to act as a liaison between the CF Canada Board of Directors and the Newfoundland and Labrador Chapter. As Provincial Advocate, his responsibilities are to create awareness about CF, fundraise and to advocate for those affected by cystic fibrosis the most common fatal genetic disease affecting Canadian children and young adults. His career has spanned a number of sectors, from business man
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Leona Pinsky

Leona Pinsky holds the Bachelor of Arts degree and the Bachelor of Law degree. She trained and worked as a lawyer. She and her husband of 25 years have four children. She stopped working before their third child. Their youngest, born in 1999, has cystic fibrosis. She’d planned to return to work but their child with cystic fibrosis has very complicated health. As a result, she chose to stay at home and focus her energies on her family. Her doing so minimizes the disruption of cystic fibrosis to their lives. She finds fulfillment outside of the home by working for Cystic Fibrosis Canada, www.cysticfibrosis.ca, a cause to which she’s dedicated. And for which she is amply qualified through her p
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