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Leona Pinsky trained and worked as a lawyer. She and her husband of 25 years have four children the youngest of whom has cystic fibrosis. She’s a passionate supporter of www.cysticfibrosis.ca, for which John Bennett is the Newfoundland & Labrador Regional Director and Provincial Advocate. He’s been a tireless volunteer since his son John was diagnosed with cystic fibrosis in July 2010 at just 2 ½ months old. They describe their lives as parents of children with cystic fibrosis. They explain Cystic Fibrosis Canada’s support for family caregivers and its work generally. They discuss the role of
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