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Family Caregivers Unite!

Family Caregivers Unite!

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September 23rd 2013:Baby Hearts

Anna Marie Jaworski is the mother of a son with a severe congenital heart defect. She started a publishing company,www.babyheartspress.com, for the congenital heart defect community. Erin Engwall is the mother of a son, age 4, with Hypoplastic Left Heart Syndrome,www.mynameisjonas09.blogspot.ca. She’s a South Florida radio personality and a freelance writer. They tell us about themselves, their lives and their careers, and their sons and their heart defects. Drawing on their own experience and that of other family caregivers they discuss the challenges created by severe congenital heart defect

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Anna Marie Jaworski

Anna Marie Jaworski is the mother of a son with a severe congenital heart defect (CHD). He endured two open-heart surgeries in his first year of life. His surgeon told her and husband Frank that he was born with hypoplastic left heart syndrome. He underwent a revision of his last surgery at age 17 and had a Maze Procedure to stave off future arrhythmias. With a lack of information for parents, she wrote a book about the syndrome and started a publishing company for the CHD community, http://www.babyheartspress.com/. She started a support group for CHD parents in Central Texas and became a public speaker. Joey, her heart-healthy son, inspired her to write a second book, ‘My Brother Needs an O
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Erin Engwall

Erin Engwall is the mother of Jonas, age 4, with Hypoplastic Left Heart Syndrome, http://mynameisjonas09.blogspot.ca/. Recently he completed the final stage of his 3-stage repair procedures. She is a South Florida radio personality and freelance writer. She is also active in the local heart community, organizing congenital heart defect events to raise awareness about the issue, which impacts 1 in 100 children annually.
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