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Heart to Heart with Anna

Heart to Heart with Anna

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January 07th 2014:Surviving the Teenage Years with a Congenital Heart Defect

Thanks to advances in medical science, 90% of the babies born today with a congenital heart defect or CHD will live to adulthood. That means 90% of today’s babies will someday be teenagers. For the first time ever, there are more adults alive with congenital heart defects than babies. What does this mean for our aging CHD population? Each of our Guests today was born with a critical CHD (CCHD). About 25% of CHDs are considered CCHDs. Children with CCHDs need surgery or other procedures within the first year of life. They are at risk for death or disability if their heart defect is not detecte

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Featured Guests

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Jeni Busta

Jeni Busta is a 28-year-old survivor. She was diagnosed before birth with hypoplastic left heart syndrome or HLHS. In 1985 Jeni’s medical professionals knew no other older survivors. It was a miracle that Jeni survived. She was the first HLHS baby from UCLA Medical Center to make it. Jeni underwent her first open-heart surgery her first day of life and her second surgery, the Fontan, at 17 months of age. When she was 3 years old, she received a pacemaker. Since then she has had several procedures including pacemaker battery replacements and catheterizations. Growing up with a CHD was difficult since many of Jeni’s peers didn’t understand what made her heart different. She appeared healthy
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Tara McFadden

Tara McFadden was born on February 3, 1992 with hypoplastic left heart syndrome. She has had 3 open-heart surgeries and spent a total of 2 years in the hospital when considering all three of her surgeries. Since her Fontan, Procedure, Tara has been able to do things just like heart-healthy children. She graduated from Ramapo High school in 2011 and is currently attending Ramapo College in NJ where she is working toward a degree in Social Work. Tara has had physical limitations just about all of her life. She cannot play competitive sports but she still swims and can do other activities like baking, watching historic films and taking photographs. In 5th grade, Tara was diagnosed with a pr
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Monica Mossey

Monical Mossey: Monica Mossey was born on September 6, 1984 with Truncus Arteriosus Type II. She has had 3 open-heart surgeries and is currently 29 years old. Monica has dealt with feelings of fatigue and lethargy all her life. Throughout her life she has needed oxygen, wheelchairs and other assistive devices. Her dependence on this equipment has not deterred her from living a full and quality life. She graduated from high school with honors and earned an Associate’s Degree in Business with honors. At 3 years of age Monica was fitted for bilateral hearing aids. She has a severe-to-profound hearing loss but thanks to 4 years of speech therapy, her speech is easily understood. Now cochle
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